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Development of a core set of domains for data collection in cohorts of patients with Ankylosing Spondylitis receiving anti-tumor necrosis Factor-˜í¬± therapy

journal contribution
posted on 2023-05-26, 10:31 authored by Zochling, J, Sieper, J, van der Heijde, D, Braun, J
Objective. To create a core set of measurement concepts for use in the creation and maintenance of anti-tumor necrosis factor-˜í¬± patient registries in ankylosing spondylitis (AS). Methods. A Delphi-based approach was used to identify elements that best identify a patient's clinical state, disease progression, and potential drug-related toxicities. Decision-making was based on systematic literature reviews and clinical experience and expertise. Results. A core set of measurement domains was defined including disease activity and physical function outcomes. Comparison with domains used in existingAS registries showed excellent agreement with current practice. Conclusion. This core set is a basis for data collection across AS populations.

History

Publication title

The Journal of Rheumatology

Volume

35

Article number

6

Number

6

Pagination

1079-1082

ISSN

0315-162x

Publication status

  • Published

Rights statement

The definitive publisher-authenticated version is available online at http://jrheum.com/archives/jun08.html

Repository Status

  • Restricted

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