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Nationwide citizen access to their health data: analysing and comparing experiences in Denmark, Estonia and Australia

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Nohr, C, Parv, L, Kink, P, Cummings, E ORCID: 0000-0001-6501-7450, Almond, H ORCID: 0000-0001-8918-7091, Norgaard, JR and Turner, P ORCID: 0000-0003-4504-2338 2017 , 'Nationwide citizen access to their health data: analysing and comparing experiences in Denmark, Estonia and Australia' , Bmc Health Services Research, vol. 17 , pp. 1-11 , doi: 10.1186/s12913-017-2482-y.

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Abstract

Background: Most countries face an ageing population, increasing chronic diseased, and constrictions on budgetfor providing health services. Involving patients in their own care by allowing them access to their patient data is atrend seen in many places.Methods: Data on the type and level of access citizens have to their own health data in three countries wasgathered from public sources.Results: Data from each individual country is presented and the experiences of Denmark, Estonia and Australia areexamined whilst similarities and differences explored. The discussion adopts a citizen-centred perspective to considerhow the different e-portal systems support, protect and structure citizen interactions with their own health data inthree key areas: Security, privacy and data protection; User support; and Citizen adoption and use.Conclusions: The paper highlights the impact of opt-in/opt-out approaches on citizen access and the lack of astructured approach to addressing differences in citizen health and e-health literacy. This research also confirms whilecurrent data provides detail on the availability and use of personal health data by citizens, questions still remain overthe ultimate impact on patient outcomes of these initiatives. It is anticipated the insights generated from the threecountries experiences, supporting citizen access to their health data will be useful to improve these initiatives andguide other countries aspiring to support similar initiatives.

Item Type: Article
Authors/Creators:Nohr, C and Parv, L and Kink, P and Cummings, E and Almond, H and Norgaard, JR and Turner, P
Keywords: Electronic health record, Medical informatics application, Patient centred care, Health services
Journal or Publication Title: Bmc Health Services Research
Publisher: Biomed Central Ltd
ISSN: 1472-6963
DOI / ID Number: 10.1186/s12913-017-2482-y
Copyright Information:

Copyright 2017 The Authors. Licensed under Creative Commons Attribution 4.0 International (CC BY 4.0) https://creativecommons.org/licenses/by/4.0/ The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.

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