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Transforming Home: parents’ experiences of caring for children on the autism spectrum in Tasmania, Australia

Owen, C ORCID: 0000-0002-0693-386X and McCann, D ORCID: 0000-0001-6321-2586 2017 , 'Transforming Home: parents’ experiences of caring for children on the autism spectrum in Tasmania, Australia' , Housing Studies , pp. 1-26 , doi: 10.1080/02673037.2017.1390075.

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Abstract

As the private dwelling becomes the preferred site of care for individuals with a variety of complex needs, there has been a burgeoning interest in housing adaptations and the impact on experiences of home. The majority of studies are situated within the contexts of ageing, the disabled body and chronic medical conditions. In this paper, we present the results of a self-directed photography pilot study exploring the experience of carers of children on the autism spectrum in Tasmania, Australia. The findings highlight the multifarious and exacting negotiations required to meet the complex and idiosyncratic needs of children with autism and those of other family members. A key theme is a heightened need for containment enacted through micro-scale modifications to the physical fabric and spatial organization of the dwelling and through less tangible but pervasive practices and routines. The multiple constraints and extensive impact on families emphasize an urgent need for targeted research, policy development and support for this population.

Item Type: Article
Authors/Creators:Owen, C and McCann, D
Keywords: autism, home, care, housing modifications
Journal or Publication Title: Housing Studies
Publisher: Carfax Publishing
ISSN: 0267-3037
DOI / ID Number: 10.1080/02673037.2017.1390075
Copyright Information:

© 2017 Informa UK Limited, trading as Taylor & Francis Group

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