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Patient and Family Involvement: A Discussion of Co-Led Redesign of Healthcare Services


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Prior, SJ ORCID: 0000-0001-5782-9141 and Campbell, S ORCID: 0000-0003-4830-8488 2018 , 'Patient and Family Involvement: A Discussion of Co-Led Redesign of Healthcare Services' , Journal of Participatory Medicine, vol. 10, no. 1 , doi: 10.2196/jopm.8957.

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The involvement of patients and their families in the redesign of healthcare services is an important option in providing a servicethat addresses the patients’ needs and improves health outcomes. However, it is a resource-intensive approach, and it is currentlynot clear when it should be used, and what should be the reasoning behind this decision. Some health systems of internationalstanding have created a patient engagement program as a selling point. This paper discusses how co-led redesign can be beneficialin improving health service and more effectively engaging patients. Potential barriers for patient involvement are discussed.Patient involvement can be integrated into the health system at three main levels of engagement: direct care, organizational designand governance, and policy-making. The aim of this paper is to describe how co-led redesign is compatible with different levelsof patient involvement and to address the challenges in delivering a co-led redesign in healthcare. Co-led redesign not onlyinvolves the collection of quantitative data for assessing the current systems but also the collection of qualitative data throughpatient, family, and staff interviews to determine the barriers to patient satisfaction. Co-led redesign is a resource-rich processthat requires expertise in data collection and a clinical group that is devoted to implementing recommended changes. Currently,a number of countries have utilized co-led redesign for many different types of healthcare services. Resource availability andcost, process time, and lack of outcome measures are three major limiting factors.

Item Type: Article
Authors/Creators:Prior, SJ and Campbell, S
Journal or Publication Title: Journal of Participatory Medicine
Publisher: Society for Participatory Medicine
ISSN: 2152-7202
DOI / ID Number: 10.2196/jopm.8957
Copyright Information:

Copyright 2018 The AuthorsLicensed under Creative Commons Attribution 4.0 International (CC BY 4.0)

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