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Experiences and decision making during paediatric transitions to continuous sub-cutaneous insulin infusion (CSII): A mixed method study


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Altmann, E ORCID: 0000-0002-6109-4130, Stirling, CM ORCID: 0000-0003-2723-8302 and Board, L 2018 , 'Experiences and decision making during paediatric transitions to continuous sub-cutaneous insulin infusion (CSII): A mixed method study' , Digital Health, vol. 4 , pp. 1-9 , doi: 10.1177/2055207618806083.

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Objectives: We aimed to improve the decision quality and outcomes for families with children or adolescents with diabetesconsidering continuous sub-cutaneous insulin infusion (CSII).Methods: A mixed method study involved three focus groups with youth, parents and clinicians to provide experienceinformation as background to the development of a decision aid (DA). A pre-test (T1) and post-test (T2) evaluation of theDA with a convenience sample of five families considering initiating CSII.Results: The focus group data showed that families found the move to CSII to be generally empowering with adolescentsengaging with the technology quickly, and that experiential information from others was important in the process.Participants increased their knowledge and decreased decisional conflict after using the DA from T1 to T2. Preferredoption measurement indicated that at T1, three participants were ‘unsure’ and two participants’ preferred option wasCSII. After exposure to the DA at T2, those who were previously unsure had a preferred option of CSII with a resulting fivepeople with a preferred option of CSII.Conclusions: The results from this study suggest that transitioning to CSII for paediatric and adolescent patients and theircarers may be assisted by a DA and that participants felt empowered to a make decision regarding CSII when using thePANDANI DA. The quasi-experimental design without randomisation or control group was a study limitation caused by thesmall number of participants. Expanding this pilot research into a randomised control trial would decrease the threat tovalidity from other possible explanations for the improvement in decisional conflict, such as nurse educators.

Item Type: Article
Authors/Creators:Altmann, E and Stirling, CM and Board, L
Keywords: decision aid, insulin pump therapy, technology
Journal or Publication Title: Digital Health
Publisher: Sage Publications Ltd.
ISSN: 2055-2076
DOI / ID Number: 10.1177/2055207618806083
Copyright Information:

© 2018 The Authors. Licensed under Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0)

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