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Applying participatory health research elements in rural end-of-life research: reflections on conducting in-depth Interviews with participants on sensitive topics

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Thompson, S, Marsh, P ORCID: 0000-0002-4371-2628, Mond, JM ORCID: 0000-0002-0410-091X and Brown, C 2019 , 'Applying participatory health research elements in rural end-of-life research: reflections on conducting in-depth Interviews with participants on sensitive topics' , Forum Qualitative Sozialforschung, vol. 20, no. 3 .

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Abstract

The "Living Loving Dying" research project aimed to improve end of life and bereavementcare for people caring and dying in rural areas. The data were provided by people who hadexperienced caring for someone until his/her death, while living in an area of low population and geographical isolation. Undertaking data collection on such a sensitive topic, from people still vulnerable from the impacts of death and grief, requires the use of particularly sensitive research methods. It is also important that participants feel their voices are heard and that they are contributing to positive change for others. In view of this we positioned people to participate as community-partners and utilized a descriptive qualitative design with participatory elements in the data collection method of in-depth, semi structured interviewing. The non-hierarchical relationship between researchers and community-partners were key influences for using participatory elements in this research with a vulnerable population. In this article we reflect on the pragmatic and ethicalconsiderations that the application of this method has for rural end-of-life research.

Item Type: Article
Authors/Creators:Thompson, S and Marsh, P and Mond, JM and Brown, C
Keywords: palliative care, rural health, compassion, grief
Journal or Publication Title: Forum Qualitative Sozialforschung
Publisher: Free University of Berlin * Institute for Qualitative Research
ISSN: 1438-5627
Copyright Information:

Copyright 2019 Stephanie Thompson, Pauline Marsh, Jon Mond, Craig Brown. Licensed under Creative Commons Attribution 4.0 International (CC BY 4.0) https://creativecommons.org/licenses/by/4.0/

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