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Zawati, MH, Chalmers, DRC 
ORCID: 0000-0002-7925-8818, Dallari, SG, de Neiva Borba, M, Pinkesz, M, Joly, Y, Chen, H, Hartlev, M, Leitsalu, L, Soini, S, Rial-Sebbag, E, Hoppe, N, Garani-Papadatos, T, Vidalis, P, Srinivas, KR, Siegal, G, Negri, S, Hatanaka, R, Al-Hussaini, M, Al-Tabba, A, Motta-Murgia, L, Moran, LET, Hendriks, A, Nnamuchi, O, Isasi, R, Krekora-Zajac, D, Sadoun, E, Ho, C, Andanda, P, Lee, WB, Nicolas, P, Mattsson, T, Talanova, V, Dosch, A, Sprumont, D, Fan, CT, Hung, TH, Kaye, J, Phillips, A, Gowans, H, Shah, N and Hazel, JW 2019
, 'Country Reports'
, Journal of Law, Medicine and Ethics, vol. 47, no. 4
, pp. 582-704
, doi: https://doi.org/10.1177/1073110519897736.
ORCID: 0000-0002-7925-8818, Dallari, SG, de Neiva Borba, M, Pinkesz, M, Joly, Y, Chen, H, Hartlev, M, Leitsalu, L, Soini, S, Rial-Sebbag, E, Hoppe, N, Garani-Papadatos, T, Vidalis, P, Srinivas, KR, Siegal, G, Negri, S, Hatanaka, R, Al-Hussaini, M, Al-Tabba, A, Motta-Murgia, L, Moran, LET, Hendriks, A, Nnamuchi, O, Isasi, R, Krekora-Zajac, D, Sadoun, E, Ho, C, Andanda, P, Lee, WB, Nicolas, P, Mattsson, T, Talanova, V, Dosch, A, Sprumont, D, Fan, CT, Hung, TH, Kaye, J, Phillips, A, Gowans, H, Shah, N and Hazel, JW 2019
, 'Country Reports'
, Journal of Law, Medicine and Ethics, vol. 47, no. 4
, pp. 582-704
, doi: https://doi.org/10.1177/1073110519897736.
Full text not available from this repository.
Abstract
Researchers in genomics are exploring novel ways to interact directly with prospective participants without utilizing physicians, hospitals, or biobanks as intermediaries. Many researchers are interested in using the internet to directly recruit and enroll research participants in genomic studies by posting information online about active or proposed studies. This direct-to-participant (DTP) approach could take place under three main scenarios.
| Item Type: | Article |
|---|---|
| Authors/Creators: | Zawati, MH and Chalmers, DRC and Dallari, SG and de Neiva Borba, M and Pinkesz, M and Joly, Y and Chen, H and Hartlev, M and Leitsalu, L and Soini, S and Rial-Sebbag, E and Hoppe, N and Garani-Papadatos, T and Vidalis, P and Srinivas, KR and Siegal, G and Negri, S and Hatanaka, R and Al-Hussaini, M and Al-Tabba, A and Motta-Murgia, L and Moran, LET and Hendriks, A and Nnamuchi, O and Isasi, R and Krekora-Zajac, D and Sadoun, E and Ho, C and Andanda, P and Lee, WB and Nicolas, P and Mattsson, T and Talanova, V and Dosch, A and Sprumont, D and Fan, CT and Hung, TH and Kaye, J and Phillips, A and Gowans, H and Shah, N and Hazel, JW |
| Keywords: | genomics, direct-to-participant approach, DTP |
| Journal or Publication Title: | Journal of Law, Medicine and Ethics |
| Publisher: | Amer Soc Law Medicine Ethics |
| ISSN: | 1073-1105 |
| DOI / ID Number: | https://doi.org/10.1177/1073110519897736 |
| Copyright Information: | Copyright 2019 The Authors |
| Related URLs: | |
| Item Statistics: | View statistics for this item |
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