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Zawati, MH, Chalmers, DRC ORCID: 0000-0002-7925-8818, Dallari, SG, de Neiva Borba, M, Pinkesz, M, Joly, Y, Chen, H, Hartlev, M, Leitsalu, L, Soini, S, Rial-Sebbag, E, Hoppe, N, Garani-Papadatos, T, Vidalis, P, Srinivas, KR, Siegal, G, Negri, S, Hatanaka, R, Al-Hussaini, M, Al-Tabba, A, Motta-Murgia, L, Moran, LET, Hendriks, A, Nnamuchi, O, Isasi, R, Krekora-Zajac, D, Sadoun, E, Ho, C, Andanda, P, Lee, WB, Nicolas, P, Mattsson, T, Talanova, V, Dosch, A, Sprumont, D, Fan, CT, Hung, TH, Kaye, J, Phillips, A, Gowans, H, Shah, N and Hazel, JW 2019 , 'Country Reports' , Journal of Law, Medicine and Ethics, vol. 47, no. 4 , pp. 582-704 , doi: 10.1177/1073110519897736.

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Abstract

Researchers in genomics are exploring novel ways to interact directly with prospective participants without utilizing physicians, hospitals, or biobanks as intermediaries. Many researchers are interested in using the internet to directly recruit and enroll research participants in genomic studies by posting information online about active or proposed studies. This direct-to-participant (DTP) approach could take place under three main scenarios.

Item Type: Article
Authors/Creators:Zawati, MH and Chalmers, DRC and Dallari, SG and de Neiva Borba, M and Pinkesz, M and Joly, Y and Chen, H and Hartlev, M and Leitsalu, L and Soini, S and Rial-Sebbag, E and Hoppe, N and Garani-Papadatos, T and Vidalis, P and Srinivas, KR and Siegal, G and Negri, S and Hatanaka, R and Al-Hussaini, M and Al-Tabba, A and Motta-Murgia, L and Moran, LET and Hendriks, A and Nnamuchi, O and Isasi, R and Krekora-Zajac, D and Sadoun, E and Ho, C and Andanda, P and Lee, WB and Nicolas, P and Mattsson, T and Talanova, V and Dosch, A and Sprumont, D and Fan, CT and Hung, TH and Kaye, J and Phillips, A and Gowans, H and Shah, N and Hazel, JW
Keywords: genomics, direct-to-participant approach, DTP
Journal or Publication Title: Journal of Law, Medicine and Ethics
Publisher: Amer Soc Law Medicine Ethics
ISSN: 1073-1105
DOI / ID Number: 10.1177/1073110519897736
Copyright Information:

Copyright 2019 The Authors

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