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The association of proxy care engagement with proxy reports of patient experience and quality of life

Roydhouse, J, Gutman, R, Keating, NL, Mor, V and Wilson, IB 2018 , 'The association of proxy care engagement with proxy reports of patient experience and quality of life' , Health Services Research, vol. 53, no. 5 , pp. 3809-3824 , doi: 10.1111/1475-6773.12980.

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Abstract

Objective. To assess the association of proxy-specific covariates with proxy-reportedpatient cancer care experience, quality rating, and quality of life.Data Sources/Study Setting. Secondary analysis of data from the Cancer Care Outcomes Research and Surveillance (CanCORS) study.Study Design. Cross-sectional observational study. The respondents were proxies forpatients with incident colorectal or lung cancer.Data Collection/Extraction Methods. Analyses used linear regression models andadjusted for patient sociodemographic and clinical characteristics. Outcomes includedpatients’ experiences with medical care, nursing care, and care coordination, overallquality ratings, and physical and mental health, all scored on 0–100 scales (0 = worst,100 = best). Independent variables included the proxy’s relationship with the patientand engagement in patient care.Principal Findings. Of 1,011 proxies, most were the patient’s spouse (50 percent) orchild (36 percent). Although most proxies (66 percent) always attended medical visits,3 percent reported never attending. After adjustment, on average children reportedworse experiences and poorer quality care than spouses (4–9 points lower across outcomes). Proxies who never attended medical visits reported significantly worse medicalcare (-11 points, 95 percent CI = -18 to -3) and care coordination (-13 points, 95percent CI = -20 to -6).Conclusions. Collecting data on proxy engagement in care is warranted if proxyresponses are used.

Item Type: Article
Authors/Creators:Roydhouse, J and Gutman, R and Keating, NL and Mor, V and Wilson, IB
Keywords: cancer, survey, proxy-reported, quality of life, care experience
Journal or Publication Title: Health Services Research
Publisher: Wiley-Blackwell Publishing, Inc.
ISSN: 1475-6773
DOI / ID Number: 10.1111/1475-6773.12980
Copyright Information:

Copyright 2018 Health Research and Educational Trust

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