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Patient-centered decision making in amyotrophic lateral sclerosis: where are we?


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Hogden, A ORCID: 0000-0002-4317-7960 and Crook, A 2017 , 'Patient-centered decision making in amyotrophic lateral sclerosis: where are we?' , Neurodegenerative disease management, vol. 7, no. 6 , pp. 377-386 , doi: 10.2217/nmt-2017-0026.

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Developments in amyotrophic lateral sclerosis research and care delivery have created new arenas, and new dilemmas, for patients' decision making. This review explores three aspects of amyotrophic lateral sclerosis patient-centered care and decision making: patient-centered service delivery through the expanding multidisciplinary team; decision making for genetic testing and the implications of undergoing testing; and development of user-designed decision support tools to help patients and families make decisions as their choices become more complex. Until a cure is found, well-timed and effective decision making will rely on patient and family preferences to guide them through an increasingly complicated disease landscape.

Item Type: Article
Authors/Creators:Hogden, A and Crook, A
Keywords: multidisciplinary care; genetic counselling, decision-making
Journal or Publication Title: Neurodegenerative disease management
Publisher: Future Medicine
ISSN: 1758-2024
DOI / ID Number: 10.2217/nmt-2017-0026
Copyright Information:

Copyright 2017 Anne Hogden. Licensed under Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0)

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