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A qualitative systematic review of caregivers’ experiences of caring for family diagnosed with schizophrenia

Cleary, M ORCID: 0000-0002-1453-4850, West, S, Hunt, GE, McLean, L and Kornhaber, R ORCID: 0000-0001-6556-6775 2020 , 'A qualitative systematic review of caregivers’ experiences of caring for family diagnosed with schizophrenia' , Issues in Mental Health Nursing, vol. 41, no. 8 , pp. 667-683 , doi: 10.1080/01612840.2019.1710012.

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Abstract

Objective: To synthesise qualitative research that explored caregivers’ experiences of caring forfamily diagnosed with schizophrenia.Methods: Electronic databases including PsycINFO, PubMed, CINAHL and Scopus were searchedto identify relevant journal articles published from 2000 to March 2019. Quality was assessed andthematic synthesis of the qualitative research evidence undertaken. Papers were screened andindependently appraised by two reviewers using The Critical Appraisal Skills Programme (CASP)for Qualitative Studies Checklist. The review was guided by Thomas and Harden’s framework forthematic synthesis of qualitative research evidence.Results: The breadth of information across the 43 papers was noteworthy. Review of the findingsnoted that almost all of what was discussed fell into three broad themes: the ‘feelings’ of the caregivertowards their role, the patient and others, including the health system; the ‘impacts’ of thediagnosis and their caregiving role on the caregiver; and the ‘needs’ of the caregiver to improvethe patient’s quality of life and thereby the caregiver’s quality of life. Within needs also came recommendationsfor future changes.Conclusion: Studies have shown that the caregiving process is a complex one, with both negativeand positive emotional reactions, societal barriers, such as stigma and isolation, and unmet needs,such as timely, relevant and helpful information. Meeting the needs identified by caregivers hasthe capacity to address the impacts of the illness and caregiving and thereby reduce the negativefeelings associated with the caregiver role.

Item Type: Article
Authors/Creators:Cleary, M and West, S and Hunt, GE and McLean, L and Kornhaber, R
Keywords: schizophrenia, caregiver, experiences, qualitative, systematic review
Journal or Publication Title: Issues in Mental Health Nursing
Publisher: Taylor & Francis Inc.
ISSN: 0161-2840
DOI / ID Number: 10.1080/01612840.2019.1710012
Copyright Information:

Copyright 2020 Taylor & Francis Group, LLC

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