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Abstract

Purpose In surveys and in research, proxies such as family members may be used to assess patient health-relatedquality of life. The aim of this research is to help cancerresearchers select a validated health-related quality of lifetool if they anticipate using proxy-reported data.Methods Systematic review and methodological appraisalof studies examining the concordance of paired adult cancer patient and proxy responses for multidimensional,validated HRQOL tools. We searched PubMed, CINAHL,PsycINFO and perused bibliographies of reviewed papers.We reviewed concordance assessment methods, results, andassociated factors for each validated tool.Results A total of 32 papers reporting on 29 study populations were included. Most papers were cross-sectional(N=20) and used disease-specifc tools (N=19), primarily the FACT and EORTC. Patient and proxy mean scoreswere similar on average for tools and scales, with mostmean diferences N=15) evaluated factors associated with concordance, and results andmeasurement approaches were inconsistent. The EORTCwas the most commonly evaluated disease-specifc tool(N=5 papers). For generic tools, both concordance andassociated factor information was most commonly availablefor the COOP/WONCA (N=3 papers). The MQOL was themost frequently evaluated end-of-life tool (N=3 papers).

Item Type:	Article
Authors/Creators:	Roydhouse, J and Wilson, IB
Keywords:	cancer, proxy-reported, quality of life
Journal or Publication Title:	Quality of Life Research
Publisher:	Springer Netherlands
ISSN:	1573-2649
DOI / ID Number:	https://doi.org/10.1007/s11136-017-1540-6
Copyright Information:	Copyright 2017 Springer International Publishing Switzerland
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