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Australian perspectives on the ethical and regulatory considerations for responsible data sharing in response to the COVID-19 pandemic
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Abstract
As the rush to understand and find solutions to the coronavirus disease 2019 pandemic continues, it is timely to re-examine the legal, social and ethical drivers for sharing health-related data from individuals around the globe. International collaboration and data sharing will be essential to the research effort. This raises the question of whether the urgent imperative to find therapies and vaccines may justify some temporary rebalancing of existing ethical and regulatory standards. The Global Alliance for Genomic Health is playing a leading role in collecting information about national approaches to these challenging questions. In this section, we examine some of the initiatives being taken in Australia against this global backdrop.
Item Type: | Article |
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Authors/Creators: | Nicol, D and Chalmers, D and Critchley, C and Eckstein, L and Nielsen, J and Otlowski, M |
Keywords: | COVID-19, GA4GH, genomic data sharing, intellectual property, medical devices regulation, privacy, research ethics |
Journal or Publication Title: | Journal of Law and Medicine |
Publisher: | Lawbook Co. |
ISSN: | 1320-159X |
Copyright Information: | Copyright 2020 Thomson Reuters (Professional) Australia Limited. |
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Item Statistics: | View statistics for this item |
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