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How can we improve patient-centered care of motor neuron disease?

Hogden, A ORCID: 0000-0002-4317-7960, Paynter, C and Hutchinson, K 2020 , 'How can we improve patient-centered care of motor neuron disease?' , Neurodegenerative Disease Management, vol. 10, no. 2 , pp. 95-101 , doi: 10.2217/nmt-2019-0031.

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This perspectives paper discusses patient-centered care for people living with motor neuron disease. We identify challenges and offer solutions from the patient-centered care literature for this population in frontline care, service delivery, research and health system organization. Examples from Australian and international motor neuron disease care are used to illustrate interrelated issues for practice and policy.

Item Type: Article
Authors/Creators:Hogden, A and Paynter, C and Hutchinson, K
Keywords: amyotrophic lateral sclerosis, co-design, guidelines, patient and public involvement, patient engagement, policy, shared decision-making
Journal or Publication Title: Neurodegenerative Disease Management
Publisher: Future Medicine Ltd.
ISSN: 1758-2024
DOI / ID Number: 10.2217/nmt-2019-0031
Copyright Information:

Copyright 2020 Future Medicine Ltd

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