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Donor Perspectives on issues associated with donation of genetic samples and information: an Australian viewpoint

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Otlowski, MFA 2007 , 'Donor Perspectives on issues associated with donation of genetic samples and information: an Australian viewpoint' , Journal of Bioethical Inquiry, vol. 4, no. 2 , pp. 135-150 , doi: 10.1007/s11673-007-9055-4.

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Abstract

This paper provides a legal overview of key
issues associated with donation of genetic samples and
information from a donor perspective. In particular, it
addresses the property status of samples as well as
issues in respect of consent, privacy, commercialisation
and benefit sharing. The paper highlights the need for
appropriate protection and safeguards for individuals,
but also, importantly, for understanding what donors
actually think and want in terms of genetic research
and the use of their samples and information. The
paper seeks to emphasise the importance of transparency
and accountability in the conduct of research in
order to maximise donor participation and confidence
and public trust in general.

Item Type: Article
Authors/Creators:Otlowski, MFA
Keywords: Tissue and organ procurement . Genetic research . Tissue banks . Trust . Public policy
Journal or Publication Title: Journal of Bioethical Inquiry
Publisher: Springer
ISSN: 1176-7529
DOI / ID Number: 10.1007/s11673-007-9055-4
Additional Information:

The definitive version is available at http://www.sciencedirect.com

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