Open Access Repository

A pilot study of social inclusion and quality of life for parents of children with autism spectrum disorder

Due, C, Smith, IG, Allen, P, Button, E, Cheek, C ORCID: 0000-0001-9426-1102, Quarmby, L ORCID: 0000-0002-7360-146X, Stephens, M ORCID: 0000-0003-2088-2170, Paku, S, Ferguson, S and Fordyce, K 2017 , 'A pilot study of social inclusion and quality of life for parents of children with autism spectrum disorder' , Journal of Intellectual & Developmental Disability, vol. 43, no. 1 , pp. 73-82 , doi: 10.3109/13668250.2017.1310812.

Full text not available from this repository.


Background: Access to both childcare and early intervention for pre-school children with autism spectrum disorder (ASD) can be difficult for parents or carers and may impact on parental social inclusion and wellbeing. There is limited research investigating how specialist centres offering both services may impact on parental outcomes.Method: Parents whose children were attending such a specialised childcare setting in two states in Australia (Tasmania and South Australia) were invited to participate in a mixed-methods study investigating quality of life (Qol), social inclusion and perceptions of the centres.Results: Parents had typically low levels of QoL but reported a range of benefits from receiving services, including increased levels of community participation and increased competence and confidence in themselves as parents.Conclusions: Childcare centres offering specialist multi-disciplinary early intervention and parental support are valued by parents and assist with social inclusion.

Item Type: Article
Authors/Creators:Due, C and Smith, IG and Allen, P and Button, E and Cheek, C and Quarmby, L and Stephens, M and Paku, S and Ferguson, S and Fordyce, K
Keywords: autism spectrum disorder, quality of life, parental perceptions, early intervention, multidisciplinary, social inclusion
Journal or Publication Title: Journal of Intellectual & Developmental Disability
Publisher: Taylor & Francis Ltd
ISSN: 1366-8250
DOI / ID Number: 10.3109/13668250.2017.1310812
Copyright Information:

Copyright 2017 Australasian Society for Intellectual Disability, Inc.

Related URLs:
Item Statistics: View statistics for this item

Actions (login required)

Item Control Page Item Control Page