Please Note:

The Open Access Repository has moved to a new authentication system as of the 1st of November.

Account holders will now be able to login using their University of Tasmania credentials.
If you have trouble logging in please email us on E.Prints@utas.edu.au so we can assist you.

Public users can still access the records in this repository as normal

Open Access Repository

Investigating genetic discrimination in Australia: Perceptions and experiences of Clinical Genetics Service clients regarding coercion to test, insurance and employment

Downloads

Downloads per month over past year

Otlowski, MFA and Stranger, MJA and Taylor, S and Barlow-Stewart, K and Treloar, S (2007) Investigating genetic discrimination in Australia: Perceptions and experiences of Clinical Genetics Service clients regarding coercion to test, insurance and employment. Australian Journal of Emerging Technologies and Society, 5 (2). pp. 63-83. ISSN 1449-0706

[img] PDF
4260.pdf | Request a copy
Full text restricted
Available under University of Tasmania Standard License.

Abstract

Survey and interview-based findings from the Consumer Study of the Australian Genetic Discrimination Project (GDP) are reported. These involve perceptions and experiences of clinical genetics clients regarding coercion to undertake genetic testing and insurance and employment-related issues. Genetic discrimination is defined as the differential treatment of asymptomatic individuals because of actual or presumed genetic differences. Eligible adults (n=2667) who had requested predictive testing for designated mature-onset conditions, 1998 to 2003, were surveyed; 951/1185 respondents met asymptomatic inclusion criteria. Neurological disorders and familial cancers were relevant to the majority. Sources of coercion, where reported, included family members, doctors, geneticists/counsellors and life insurers. Insurance and employment related issues were raised; some respondents reported avoiding or being advised not to apply for life insurance. Interview data further elucidate context and impact of coercion and/or negative treatment. The experiences of respondents where neurological conditions were relevant differed from others. Implications of the study are discussed.

Item Type: Article
Keywords: Genetic discrimination; Australia; coercion; insurance; employment; clinical genetics clients.
Journal or Publication Title: Australian Journal of Emerging Technologies and Society
Publisher: Swinburne University
Page Range: pp. 63-83
ISSN: 1449-0706
Date Deposited: 07 Apr 2008 14:30
Last Modified: 18 Nov 2014 03:35
Item Statistics: View statistics for this item

Actions (login required)

Item Control Page Item Control Page
TOP