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The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination

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Joly, Y, Huerne, K, Arych, M, Bombard, Y, De Paor, A, Dove, ES, Granados Moreno, P, Ho, CWL, Ho, CH, Van Hoyweghen, I, Kim, H, Lebret, A, Minssen, T, Cathaoir, KO, Prince, AER, Nair, APS, Otlowski, M ORCID: 0000-0003-4707-4325, Pepper, MS, Sladek, R, Song, L, Voigt, TH, Zawati, MH and Dalpe, G 2021 , 'The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination' , Trends in Genetics, vol. 37, no. 11 , pp. 951-954 , doi: https://doi.org/10.1016/j.tig.2021.08.004.

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Abstract

Genetic discrimination (GD) is the differential or unfair profiling of an individual on the basis of genetic data. This article summarizes the actions of the Genetic Discrimination Observatory (GDO) in addressing GD and recent developments in GD since late 2020. It shows how GD can take many forms in today's rapidly evolving society.

Item Type: Article
Authors/Creators:Joly, Y and Huerne, K and Arych, M and Bombard, Y and De Paor, A and Dove, ES and Granados Moreno, P and Ho, CWL and Ho, CH and Van Hoyweghen, I and Kim, H and Lebret, A and Minssen, T and Cathaoir, KO and Prince, AER and Nair, APS and Otlowski, M and Pepper, MS and Sladek, R and Song, L and Voigt, TH and Zawati, MH and Dalpe, G
Keywords: genetic discrimination, Genetic Discrimination Observatory
Journal or Publication Title: Trends in Genetics
Publisher: Elsevier Science London
ISSN: 0168-9525
DOI / ID Number: https://doi.org/10.1016/j.tig.2021.08.004
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© 2021 Elsevier Ltd. All rights reserved.
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