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A step forward, but still inadequate: Australian health professionals’ views on the genetics and life insurance moratorium

Tiller, JM, Keogh, LA, McInerney-Leo, AM, Belcher, A, Barlow-Stewart, K, Boughtwood, T, Gleeson, P, Dowling, G, Prince, A, Bombard, Y, Joly, Y, Delatycki, M, Winship, IM, Otlowski, M ORCID: 0000-0003-4707-4325 and Lacaze, P 2021 , 'A step forward, but still inadequate: Australian health professionals’ views on the genetics and life insurance moratorium' , Journal of Medical Genetics , pp. 1-26 , doi: 10.1136/jmedgenet-2021-107989.

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Abstract

Background In 2019, the Australian life insurance industry introduced a partial moratorium (ban) limiting the use of genetic test results in life insurance underwriting. The moratorium is industry self-regulated and applies only to policies below certain financial limits (eg, $500 000 of death cover).Methods We surveyed Australian health professionals (HPs) who discuss genetic testing with patients, to assess knowledge of the moratorium; reported patient experiences since its commencement; and HP views regarding regulation of genetic discrimination (GD) in Australia.Results Between April and June 2020, 166 eligible HPs responded to the online survey. Of these, 86% were aware of the moratorium, but Conclusion While the current Australian moratorium is considered a step forward, most HPs believe it falls short of an adequate long-term regulatory solution to GD in life insurance.

Item Type: Article
Authors/Creators:Tiller, JM and Keogh, LA and McInerney-Leo, AM and Belcher, A and Barlow-Stewart, K and Boughtwood, T and Gleeson, P and Dowling, G and Prince, A and Bombard, Y and Joly, Y and Delatycki, M and Winship, IM and Otlowski, M and Lacaze, P
Keywords: genetics, life insurance, moratorium, genetic discrimination
Journal or Publication Title: Journal of Medical Genetics
Publisher: BMJ Group
ISSN: 0022-2593
DOI / ID Number: 10.1136/jmedgenet-2021-107989
Copyright Information:

© Author(s) (or their employer(s)) 2021

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