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Principles and philosophies for speech and language therapists working with people with primary progressive aphasia: an international expert consensus

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Volkmer, A, Cartwright, J, Ruggero, L, Beales, A, Gallee, J, Grasso, S, Henry, M, Jokel, R, Kindell, J, Khayum, R, Pozzebon, M, Rochon, E, Taylor-Rubin, C, Townsend, R, Walker, F, Beeke, S and Hersh, D 2022 , 'Principles and philosophies for speech and language therapists working with people with primary progressive aphasia: an international expert consensus' , Disability and Rehabilitation , doi: 10.1080/09638288.2022.2051080.

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Abstract

Purpose Primary progressive aphasia (PPA) is a language-led dementia associated with Alzheimer’s pathology and fronto-temporal lobar degeneration. Multiple tailored speech and language interventions have been developed for people with PPA. Speech and language therapists/speech-language pathologists (SLT/Ps) report lacking confidence in identifying the most pertinent interventions options relevant to their clients living with PPA during their illness trajectory.Materials and methods The aim of this study was to establish a consensus amongst 15 clinical-academic SLT/Ps on best practice in selection and delivery of speech and language therapy interventions for people with PPA. An online nominal group technique (NGT) and consequent focus group session were held. NGT rankings were aggregated and focus groups video recorded, transcribed, and reflexive thematic analysis undertaken.Results The results of the NGT identified 17 items. Two main themes and seven further subthemes were identified in the focus groups. The main themes comprised (1) philosophy of person-centredness and (2) complexity. The seven subthemes were knowing people deeply, preventing disasters, practical issues, professional development, connectedness, barriers and limitations, and peer support and mentoring towards a shared understanding.Conclusions This study describes the philosophy of expert practice and outlines a set of best practice principles when working with people with PPA.

Item Type: Article
Authors/Creators:Volkmer, A and Cartwright, J and Ruggero, L and Beales, A and Gallee, J and Grasso, S and Henry, M and Jokel, R and Kindell, J and Khayum, R and Pozzebon, M and Rochon, E and Taylor-Rubin, C and Townsend, R and Walker, F and Beeke, S and Hersh, D
Keywords: primary progressive aphasia, speech pathology, treatment principles, speech and language therapy, speech-language pathology, consensus, best practice principles
Journal or Publication Title: Disability and Rehabilitation
Publisher: Taylor & Francis
ISSN: 0963-8288
DOI / ID Number: 10.1080/09638288.2022.2051080
Copyright Information:

Copyright 2022 the authors. Licensed under Creative Commons Attribution 4.0 International (CC BY 4.0) https://creativecommons.org/licenses/by/4.0/

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