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Abstract

Objective. To create a core set of measurement concepts for use in the creation and maintenance of anti-tumor necrosis factor-α patient registries in ankylosing spondylitis (AS).
Methods. A Delphi-based approach was used to identify elements that best identify a patient’s clinical state, disease progression, and potential drug-related toxicities. Decision-making was based on systematic literature reviews and clinical experience and expertise.
Results. A core set of measurement domains was defined including disease activity and physical function outcomes. Comparison with domains used in existingAS registries showed excellent agreement with current practice.
Conclusion. This core set is a basis for data collection across AS populations.

Item Type:	Article
Authors/Creators:	Zochling, J and Sieper, J and van der Heijde, D and Braun, J
Keywords:	ANKYLOSING SPONDYLITIS, TUMOR, NECROSIS, FACTOR-a INHIBITORS REGISTRIES
Journal or Publication Title:	The Journal of Rheumatology
ISSN:	0315-162x
Additional Information:	The definitive publisher-authenticated version is available online at http://jrheum.com/archives/jun08.html
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